Margaret Inapss - 03/23/98 07:45:12
My URL:http://inapss@ozemail.com.au
Where are you from?: Melbourne Australia
How did you find these pages?: Surfing the Net
Are you a regular visitor here?: No
Do you have Graves' Disease or related?: Yes

Comments:


Marsha Nowlin - 03/21/98 15:17:56
My Email:timmar@colla.com
Where are you from?: Louisiana
How did you find these pages?: Surfing
Are you a regular visitor here?: No
Do you have Graves' Disease or related?: Yes
Any new links I should add?: No

Comments:
I have had this disease for years and I am just now coming to terms with it and trying to help other people. By that I mean I just started a support group. I have had a rough time because I went with it for years without being diagnosed. I actually refused to go to the doctor, even though I was down to about 100 pounds, shaking, losing handfuls of hair, and having mood swings from hell. My problem is this, the doctors i have seen are now saying I am neither hypo or hyper. I am still on just propanol. they took me off PTU and Synthroid six months ago. I feel awful. I will go to sleep at any time if I sit still long enough. I can't work because of the extreme fatigue, and eye problems. I am not happy with the response from my endo. and I have seen different ones, that still want to say I am ok. I'm not. Have you ever encountered this? What do you have to do? Hit them over the head and scream at them? If you can't tell, I am slightly frustrated. Sorry. The good news is I have the best husband in the world who most of the time understands and does his best to help. One last note, I think what you are doing is great.

Bonnie Domin - 03/20/98 18:03:31
My Email:bdomin@kns.com
Where are you from?: PA
How did you find these pages?: search Yahoo for Graves Disease
Are you a regular visitor here?: first visit
Do you have Graves' Disease or related?: Just diagnosed with Graves disease
Any new links I should add?: www.intelihealth.com/news?173219

Comments:
I was diagnosed with Graves disease in February. I've been on PTU for about a month. I'll go for a blood test next week. My doctor wants to keep me on PTU until my thyroid is not as "hot", and then zap me with a dose of Radioactive Iodine. I was OK with this until last week when I read in Intelihealth newsletter that there is a higher death rate tied to thyroid radiation. Now I'm not sure which direction I'll go. I'm not happy taking PTU. It seems that a drug that 'could' attack your white blood cells isn't real user friendly either.

steve white - 03/20/98 04:06:22
My Email:stevenwhite@kih.net
Where are you from?: Ky. USA
How did you find these pages?: Yahoo search
Are you a regular visitor here?: First time
Do you have Graves' Disease or related?: yes since 1991

Comments:
Great story and nicely told, congratulations for being so stand up about this insidious disease! Since my onset of Graves, I have talked to literally thouseands of sufferers. A few common threads seem to conect all of us together even though there are well over 100 syptoms pointing to this illness. It seems to me that fatique, depression and irratibility almost always manifest in this. Even once the levels are smoothed out, they do not necessarily disapear. Another is the lack of information the professional sector seem to subscribe to. It has been suggested that "most" Endo's think the body starts and ends in their particular field, when in fact a series of specialists are required to succcessfully combat the total and overall effects that Graves have on the body. I went through the Doctors who would not believe the symptoms as I recalled them, 6 Dr.s before I found the one who would listen to me and then react. Since, my health has improved greatly over which it was. Find yourself a Dr. who will listen! If one throws up his hands, throw yours up in a wave and tell him/her goodbye. You know how you feel and along with standardized tests, there are good results to be had. Become informed and read anything and everything you can find on this and share it with others. Stay resolved to win! Good luck!

Anita Lytle - 03/18/98 02:19:07
My Email:aclytle@worldnet.att.net
Where are you from?: Palm Bay, FL
How did you find these pages?: looking for info
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: Yes

Comments:


Jeannette Faubert - 03/17/98 20:54:45
My Email:rjfaubert@sk.sympatico.ca
Where are you from?: Canada
How did you find these pages?: medical search
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: no, my daughter has it

Comments:
My daughter does not wish to ingest radiation into her body in an effort to shrink the thyroid. Are there any alternative, homeopathic remedies that you know of? My daughter, Holly, has been diagnosed with severe Graves disease and has very rapid heart beat with tremors of her hands and legs. We would consider surgery but not radiation. Can you offer any new medical options?

Zola M. Colston - 03/17/98 13:43:22
My Email: mbrookins@pda005.pda.state.pa.us
Where are you from?: Middletown, PA
How did you find these pages?: my daughter search for this disease on the internet at work, I do not have a computer so I had her look for information for me
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: yes I do

Comments:
My mother passed away last year in March and I was diagnosed with Graves Disease May 1997, I moved back home with my father. I have never heard of this disease before until now. As I said above, my daughter is researching this for me due to I don't have a computer, she has access to one at work. I have (2)daugthers, three granddaughters and 2 great grandchildren. I am a 54 year old black women living with this disease so if you can let me know all about this my family and I really would highly appreciate it. My home address is Zola M. Colston, 250 Ann St., Middletown, PA 17057.

Jody Spitale - 03/14/98 14:46:10
My Email:rspitale@madbbs.com
Where are you from?: Jamestown, NY
How did you find these pages?: Search Engines
Are you a regular visitor here?: I have been here before
Do you have Graves' Disease or related?: I have Graves

Comments:
I have been here before and marked this sight for my favorites because there was so much to read, this time though I can not access any of the personnal stories that were on here or the other links that were attached to this last fall early winter (around Christmas) where are the "my Story" "valeries story" and the many, many other stories and articles? I was diagnosed over 2 years ago and still my endro's can not get my numbers to regulate and I am on a constant roller coaster...It has helped me to read the information and articles that were attached prior to now. Even now there is very little that I can open to go searching for the articles and stories that were connected to this web sight around Christmas. Can you please let me know what is going on? And where all of the personnal stories went, Thank you very much. Jody Spitale PS It is not my browsers..I have Netscape Navigator 4.0 as well as Microsoft 3.1

Lisa Lofing - 03/13/98 22:24:00
My Email:llofing@telis.org
Where are you from?: Modest, Ca.
How did you find these pages?: Yahoo-my favorite!
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: yes--maybe

Comments:
In a nutshell-- My eye swelled up about 6 weeks ago and I got excruciating headaches. They pretty much put me out of commission. I am a full-time college student and work in the schools and have a job on the weekends too. I'm very bust and being out of commission was tramatic for me and everyone that it affected. I just received my BA the week these headaches started. At first, they looked for a tumor -- which panicked everybody I knew. They did thyroid work, TSH levels that came back fine -- by their blood test standard. What they did find is that a muscle of my eye is enlarged. My doctor and his conferring opthamalogist both think it is early signs of Graves' disease. I'm having blood work done next week to confirm that it is Graves' disease. I've never heard of this, and know nothing. We have always thought I had something wrong with me. I have always been very heavy. I ahve had many food allergies and have had an outrageous appetite -- I cannot get full. It doesn't matter what I eat. It's een a real problem. On one hand it relieves me to know that there is something wrong with me that may be attributed to my weight problems, as well as other health problems I have never been able to explain-- on the other hand, I don't know anything about this disease and find myself a bit panicked. So, I am waiting for my blood work, and here to get some answers for myself. I take the responsibility of my health upon myself -- I don't like to rely heavily on doctors)especially only one doctors) opinion. I would be so grateful for anything you might have to tell me at this point. This is all new and you page has so much information, I am baffled. Please take the time to mail me and tell me anything you think I should know as I start this journey. Than you for having this page and the chance to send a message. ---lisa lofing

ELLEN M. BURRELL - 03/13/98 21:40:26
My Email:BURRELLE@SMDC.ARMY.MIL
Where are you from?: LOUISIANA
How did you find these pages?: NET SEARCH
Are you a regular visitor here?: FIRST TIME
Do you have Graves' Disease or related?: YES I HAVE GRAVES DISEASE
Any new links I should add?: NOT AT THIS TIME

Comments:
LOOKING FOR ANY INFORMATION I CAN FIND. AT THIS TIME NO ONE CAN TELL WHAT IS THE CAUSE OF THE DISEASE. I HAD SURGERY 3 YEARS AGO. BUT I STILL HAVE THE BULGING IN BOTH EYES ONE MORE THAN THE OTHER, AND I AM BEING TOLD IT IS NOTHING THATB CAN BE DONE. I NEED AS MUCH INFORAMTION AS POSSIBLE.