Sharon - 05/29/98 17:16:15
My Email: kirkpatricks@csusys.ctstateu.edu
Where are you from?: Connecticut
How did you find these pages?: web search - Graves
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: yes

Comments:
Thanks so much for this terrific web site! I have just been diagnosed with Graves. I've had tremors, weight loss, goiter, rapid heart beat, fatigue, muscle weakness and now one eye seems to be developing lid retraction! I've been on PTU for about a week now and don't really feel much better yet. Basically now looking for info. on which of these symptoms - hopefully all - will go away with medication. The endo I went to didn't really give me much info. on whether or not the goiter or the eye problem will clear with medication. Any ideas? By the way, my experience with this doctor is that he was extremely annoyed when he found out I was looking for information on the web. He was actually rude -- I may have to fire him!

Linda Neal - 05/29/98 17:05:49
My Email:hifive@transport.com
Where are you from?: Coos Bay, Oregon
How did you find these pages?: Browsing
Are you a regular visitor here?: I will be!
Do you have Graves' Disease or related?: Graves

Comments:
I've just downloaded about twenty pages so I can read them s l o w l y and digest the information and support I've been praying for ..... for only God knows how long. No doubt you can relate to this. The gratitude list has increased by the minute! What can you say to someone who tells you, "No, you're NOT a hypocondriac." And, "Yes, you can achieve a state of mind that permits you to laugh about it, make jokes ... ease up ... and keep going." ????? It's hard not to use profanity in adjective form. Like "You're a F-----g miracle!" I'm new to the modern technology of computers, but I'm going to try like the devil to get myself up to date. I have found a "home" or in psycho-babble talk, a "support group". (I prefer the word "home". Self-help books and I aren't speaking these days. I was diagnosed with GD in November, after a nurse friend suggested that a pulse of 120 resting just wasn't normal and I should see a doctor. Luckily, I had a doctor with enough sensitivity and initiative to ask the right questions. He ran an EKG and a series of blood tests and said something like, "There's good news and bad news." You know the scene. The perplexed patient leaves the office in a stupor. Right? I want to write some historical stuff and send it to you..... working on finding out just how to do that. Meanwhile, through the tears, I'm thanking you and saying I want to help. I want to learn. And the job you need will be there. Remember You've got a world of talent and experience to call upon. All of that IS marketable! See you later. Linda

Martha Harris - 05/28/98 19:49:16
My URL:http://www.gte.com
My Email:Martha.Harris@ins.gte.com
Where are you from?: Irving, TX
How did you find these pages?: a friend
Are you a regular visitor here?: No, but I will be
Do you have Graves' Disease or related?: I have Graves' Disease

Comments:
I have only been diagnosed with Graves Disease within the last year or two, but I have been living the nightmare all my life. I have been suicidal since the age of 15 and before that I can remember the mood swings. My life in essence did not start until I was 42 because of all the jobs and ups and downs I have had. My last major job, I was treated like a mental case whereas a man who had the same disorder and symptoms was given so much leeway and tolerance. I ended up having to quit. I had ten years invested with the federal govenment. I could go on and on but it won't change the past . With medication, I can now live a reasonably "normal" life without too many problems. I still have the severe fatigue and am not really able to do some of the thing I want to do because I have been diagnosed with Lupus as well.

Roselle - 05/28/98 12:07:52
My Email:rdamiano@mail.colgate.edu
Where are you from?: New York
How did you find these pages?: browsing
Are you a regular visitor here?: new
Do you have Graves' Disease or related?: yes

Comments:


Pat D'Italia - 05/28/98 01:29:19
My Email:DITAL@att.net
Where are you from?: Bedminster NJ
How did you find these pages?: Searching for info.
Are you a regular visitor here?: No
Do you have Graves' Disease or related?: My wife does

Comments:
Your pages are great! I have to admit I don't know a thing about this disease, but she has been possibly,almost, maybe diagnosed after one full year of Dr's visits and TESTS. Now "they" think she might possibly, probably, maybe have GD. Strange thing she's gaining weight not losing & with a heper Thyroid. Now I must tell you my mother has a hypo-Thyroid and she is not gaining weight. She' also 78 yrs. old. What's up with that. Anything that you can tell me would be appreciated. Thank you.

Copperpenny - 05/25/98 14:52:56
My URL: http://www.angelfire.com/oh/copperpenny
My Email:copperpenny@ncweb.com
Where are you from?: Ohio
How did you find these pages?: under graves disease
Are you a regular visitor here?: now I am
Do you have Graves' Disease or related?: yes
Any new links I should add?: I want to add your page to my homepage to educate people!!!

Comments:
It is so frustrating! I am reading more about Graves then I have ever been able to find out in the Drs. office. They have been "practicing since 1991 and I just keep getting fatter. I have gone to an Herbalist, I am just stuck and odn't know exactly what to do or think. Do I let them desroy the thyroid and stay on a pill the rest of my life or do I let them keep going with the Tapazol to try to correct it. I am looking for answers and get so tired of people saying "oh, if you just eat right or excercise" if they only knew the number of times and days I would walk for miles and not eat for days and still gain weight. People just don't get it! Thank you for this page!!!!!!

Lori Ryan - 05/24/98 16:56:19
My Email:LORIRYAN@PRODIGY.NET
Where are you from?: boston
How did you find these pages?: Just Surfed in
Are you a regular visitor here?: No, but graves disease survivor
Do you have Graves' Disease or related?: Yes - Graves Disease!

Comments:
I am interested in early detection issues and educating the public l issues...mine fortunately was detected early, and treated quickly, but i have had several relapses. Its been hell living with this. People around me just dont understand this disease.

Anjanet - 05/24/98 16:54:29
My Email:Anjanet.Keeler@ins.gte.com
Where are you from?: Texas
How did you find these pages?: 411.com/GravesDisease
Are you a regular visitor here?: 1st time
Do you have Graves' Disease or related?: Graves' Disease-2 1/2 yrs. diag.

Comments:
I will be 27 on May 28th. I was mis-diagnosed w/ Bi-Polar Disorder in April of 1990. I didn't believe the dr. because they couldn't explain to my why I NEVER got depressed, just REALLY hyper. Because of this diagnosis, everytime I had my "Spells" of hyper. I was put into a psych. hospital. At the ages of 18, 20, 21 & 24 that's a lillte extreme to handle. I was put into places w/ adults who had extreme problems. I knew the diference between the and myself was that my body was sick. My mind would race out of control - so they would use Haldol and Lithium to bring me back to reality. When I was 24, just THREE WEEKS before my wedding, was the last time I got manic. It was awfull. It almost cost me everything this time. Do you know how scary it is to be forced to allow a Psych. Dr. whom you DO NOT TRUST to be in control of your future??? Well, it is complete HELL!!! She twisted everything I said and did into something mental. To be quite honest, my mind was never broken. It was my body!! I know this because I was still able to create beautiful things with my mind. I write, draw, sing and most importantly I PRAY. Let me tell you I am a Christian and "I can do all things through Christ who gives me strength." Philippians 3:14. If I hadn't allowed Christ to become my best friend, when I was eight years old, I promise you I wouldn't have made it this far in life. I have been in a psyche hospital once in eigth grade ( for 2 mos.) and 4 times (~ 2 wks/ea) as an adult, because my parents could not control me. I was out of control. It's a crazy world out there and the ones who find the narrow path are he lucky ones. Those who have to go it alone are not so lucky. I truly believe that I found the right dr. this time. He diag. me one month after I was married. My colon started to fail and I looked like I was pregnant. That caused him to look for a cause. He found it. I tested 2 x's the maximum level in the 4 - Thyroid tests. W/in two weeks I had the radiation treatment to kill my thryoid. The first month was the hardest, I gained 30 lbs. (Even on Weight Watchers). Since that time it's only become sunny each day is like Spring, over and over again. Yes, like you my life started again. People have stopped questioning me like I was mental. 7 mos. ago - on 5/31 - my new psyche. dr. (of 1.5 yrs.) sllowed me to go off the Lithium. He was the one who informed me that Lithium is a block for all Manic Episodes. That's why the attacks would end. He also said that many people, they are finding, have been mis-diagnosed for a long time. I've not had any problems. I saw my dr. last week and he asked how I was doing. I told him, "I feel awesome! and It just amazes me!!" He said, "Why are you amazed that you can be healed?" I said, "I'm not amazed that God can heal me, just that I found the right dr.'s and they listened to me finally. And that they helped me find the answers." Sorry, I've taken so much time. It's just amazing when I find someone that has experienced the same things. I know that my dreams will come true. One last thing before I go for now. I promised myself, when I was 20 (in the p. hos.) that one day, I would stand on "The Hill", in front of the Senators and Congressmen, Lobbying for a new Mental Health Bill. One that will protect people like me from being thrown into the dungeon of Bi-Polar. When they really have something else, Graves's Disease. I truly believe I was a lucky one. I never tried to kill myself, or wanted too. If I wouldn't have allowed God to carry me through the valleys, I would have never made it to the mountain-top. I definitely like the view from up here. Much better! Anjanet Email me back, ok.

Cara Hudson - 05/22/98 03:06:32
Where are you from?: Sister oregon
How did you find these pages?: yahoo search
Are you a regular visitor here?: yes
Do you have Graves' Disease or related?: graves

Comments:
Okay, so I was diagnosed in October of 1997. I have tried tapazole (gave me a huge headache) then I went on PTU (made me yak) then I started to see a Homopathic doctor, tried a vitamin replacement therapy with no luck, also a very strict deit with out sugars and complex carbo's. No Fun. Well now I'm not sure what to do.....But your site really helps....I like knowing that i'm not on this rollar coaster alone.....Thanks!

Sally - 05/19/98 14:37:15
My Email:jinkins@tomah.com
Do you have Graves' Disease or related?: don't know yet

Comments:
I found your web page very interesting. I don't know yet what I have for sure other then hight t-3 and t-4 and very low tsh 0.001, I have an apointment with the Endocrinologist this week. I found so interesting the fact that you were being treated for depression and anxiety as I have been treated for those things over the years. I will keep checking in, when I know more.