Bobbi Kuhn - 06/11/98 12:35:35
My Email:dbkuhn@zoomnet.net
Where are you from?: ohio
How did you find these pages?: surfing
Are you a regular visitor here?: YES
Do you have Graves' Disease or related?: GRAVES

Comments:
Your website is by far the best I have found. It has helped me so much in understanding all that the doctor didn't tell me about. I feel as though you are writing my life story!!!! Keep up the good work. I would never have made it without you.

Julie Roscoe - 06/10/98 22:47:01
My Email:roscoeaa@netcom.ca
Where are you from?: Hamilton, Ontario, Can.
How did you find these pages?: Surfing
Are you a regular visitor here?: I will be!
Do you have Graves' Disease or related?: Just diagnosed 6 weeks ago.

Comments:
Hi! I just finished reading your story and I have to say that I am very lucky that my doctor caught this at my age(24). I went for my physical and I told her that I did not feel well (tired, trouble with my vision, shakey, sleeplessness, ect.) To make a long story short, I was diagnosed by a endicrinologist(?) about 6 weeks ago. He is very good but says it is only mild hyperthyroid. I feel like it is severe by the way I am feeling! I just started taking the pills(same ones as you) and hopefully I will be feeling better. Will this bad taste in my mouth go away - do you know what I am talking about? I'll be reading your updates!

annamarie Joule - 06/06/98 23:36:51
My Email:ajoule@capital.net
Where are you from?: Albany, NY
How did you find these pages?: interest
Are you a regular visitor here?: first time
Do you have Graves' Disease or related?: graves' since 91

Comments:
My mother never told me there would be days like this. ...Still fighting to stay on top. 7 years and everytime I think I've won, my body tells me different.

toni - 06/06/98 23:19:54
My Email:rrrrenob@bellatlantic.net
Where are you from?: new jersey
How did you find these pages?: a friend sent it to me
Are you a regular visitor here?: first time
Do you have Graves' Disease or related?: yes i do

Comments:
i had have graves disease for 3 years now and i am in sort of in a remmision right now and feel wonderful myself i am hear if anyone wants to or needs to talk i am a example of living with graves disease and feeling fine :D call on me if you need a friend i am a very good listener and a forever friend ...... thank you paul for sending me here .....:D call me

Myra Nimmons - 06/06/98 20:36:09
My Email:Mystro34
Where are you from?: S.C.
How did you find these pages?: YAHOO
Are you a regular visitor here?: NO
Do you have Graves' Disease or related?: I have graves
Any new links I should add?: no

Comments:
I'm going to have eye surgery on June 24th. I would like to talk with someone who has had this surgery.

LeAnne E. - 06/04/98 17:22:46
Where are you from?: San Mateo, CA
How did you find these pages?: Yahoo
Are you a regular visitor here?: I am now!
Do you have Graves' Disease or related?: "subclinical" hypo, goiter

Comments:
I am sooooo glad to have found your site! I have had a blood test with free t4 of 1.1 (normal is 0.8 to 3.3?) and TSH of 1.3 (normal is 0 to 20?)yet my doctor told me the results were "normal". I'd at least call them low normal, thank you, and hearing normal made me feel like the weight gain, depression, fatigue are kinda business as usual for me. I do have a "cold node" on my left thyroid, and was referred to a surgical clinic, but gosh, the Doc forgot to explain why so I had another day+ of waiting to find out. Reading your other visitor reports, I am starting to understand this is all normal. I like my doctor a lot, she has always been good before, but I think they just don't know what is going on with these diseases. Its all the "chicken and the egg" problem, which came first, and how to stop it. Thank you!

Gay Ramsay - 06/04/98 00:34:02
My Email:gay_ramsay@HOTMAIL.COM
Where are you from?: Castlegar, British Columbia, Canada
How did you find these pages?: Yahoo Search
Are you a regular visitor here?: My First Time
Do you have Graves' Disease or related?: Yes, Graves Disease

Comments:
Thanks so much for your information. I became ill with graves in the summer of 93 just after I quit smoking. My doctor gave me a thyroid test after I complained about dried up menstrual flow. The tests said I was normal. Finally in September of 95 after several other complaints like a skin rash that wouldn't go away, sleepless nights, that another doctor perscrobed an anti depressent for, I often felt suicidal for no apparent reason, and the feelings would just come and go. I also felt Pre menstural all the time. My heart would race at 130 beats per minute for 24 hours at a time. Nothing I tried could calm it down. I was losing weight and eating more. I felt tired all the time, and really couldn't do much. I was given radioactive iodine in late September of 95 and it took until January of 96 before I could go on tyroid replacement. From September to January, at first I started to feel better, then I passed over to feeling sluggish and sleeping all the time and a very depressed state, although the time of year didn't help. Then in January my hair started to fall out not in clumps but all over, my head and my body. Finally I had to go out and buy a wig. By the end of June 96 my hair had stopped falling out and new hair was coming in. Now I have my hair long even though it is fine, I keep it long and try to take extra good care of it. What concerns me is that I am on tyroid medication, .125 daily. but my body is telling me that I still have a problem. It seems impossible to get a doctor to listen to me. Ever since the spring of 94 I have had this reoccurring kind of twitching, between my eyes in what feels like my tear ducts. I was told it was probably my sinuses, and that I must be allergic to something , so take a pill. No allergy medication has helped or even lessened it. In fact, some of them gave me the old heart racing back. I have seen the local endo doctor, he just dismissed my concernes, said my blood tests were fine. I saw the ENT doctor and by the time I got to see him the twitching was on a holiday. So he xrayed my sinuses and said there is nothing wrong. Now I have just been assessed in the sleep lab as having a very mild case of sleep apnea, ( where you stop breathing in your sleep usually accompanied by loud snoring and shaking yourself to start yourself breathing again) while I was at the sleep lab I read that one of the causes for this sleep apnea could be thyroid related.. The doctor told me my best bet would be to lose weight ( the answer to everything). I have been the same weight for many years, (with the exception of the worst of the thyroid) As I have a thyroidd condition why can't docotrs check that out instead of just telling you to lose weight, Dah!!!! If I could, lose weight don't you think I would have already done it. My weight is not that big a deal. I am wondering if there are a few other concerns I have that are thyroid related like, sweating, like water retention, like sore glands, swollen hands and feet. I must say I am not depressed like I used to feel sometimes, nor do I cry for no apparent reason, like I used to do I want to find a doctor that specializes in Graves Disease and see if I can get some better more appropreate help. Would you have any ideas on how I might go about finding someone in Canada perferably in Vancouver, BC that specializes in Graves? I sure appreciate you listening and having this page. My mother had graves disease and she had a very large goiter when she died at the age of 52 some 23 years ago. I wish you all the best, I do hope you find employment soon. and Thanks again for listening.

Louise Rowe - 06/03/98 03:54:47
My Email:therowes@vaxxine.com
Where are you from?: Canada
How did you find these pages?: Very informative
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: yes
Any new links I should add?: don't know of any

Comments:
I think you have a wonderful site. Great Work!!! I don't know much about the computer or how to make a home page.I have A site at geocities, Heartland Pointe, ICQ # 8598357, but there is nothing there because I don't know what to do. I am going for radioactive iodine on June 11/98 Sure helped reading about your problems. Now I feel like nothing is wrong with me. Thank You for listening, & keep up the good work. Hope things are still staying good for you with your Graves' Disease. Bye for now Good Luck Louise

Angie Vinyard - 05/29/98 21:30:51
My Email:angie@flash.net
Where are you from?: Texas
How did you find these pages?: Internett
Are you a regular visitor here?: yes
Do you have Graves' Disease or related?: Yes

Comments:
I'm having difficulty getting my synthroid level regulated. One doctor put me on .2, the next on .175, the next .150 and they are about to lower it again to .125. I don't even know what the normal level is. I can't get my current doctor to give me an estimate.

Sharon - 05/29/98 18:15:09
My Email:Holsteins@Kenton.K12.ky.US
Where are you from?: Ft. Thomas, KY
How did you find these pages?: infor related to Graves Disease
Are you a regular visitor here?: from now on
Do you have Graves' Disease or related?: yes - graves disease

Comments:
Diagnosed in November of 1997. I went to my GP with bladder infections, shakes and tremmors, sweating and a standing pulse rate of around 117. I had some blood work done and was referred to an endo. He immediatly recommended the radioactive iodine treatment and by January, my thyroid was destroyed and I was significanly hypo, resentful and wishing for the hyper days again. Today, I have gained 35lbs., losing my hair, continual weakness in my legs, onset of osteoperosis (fractured knee cap in February) and continual struggle with fatigue and depression. Lot's of affirmation from the web site and more understanding from my husband and family (maybe I'm not just a 'helpless victum'. The better seems to be on its way and I'm gaining some control back in my life. My meds have gone from .05 to .175mg and I'm beginning to take this disease seriously and hope to put some consistant effort into recovery. THANKS for being there!!