Elizabeth - 06/20/98 09:08:18
My Email:phil@sttl.uswestnet.
Where are you from?: Washington state.
How did you find these pages?: surfing the internet
Are you a regular visitor here?: No but mabe Iwill be.
Do you have Graves' Disease or related?: Boy do I have Graves.
Any new links I should add?: Tired and hopefull.

Comments:
I've had my bout with Graves dz.since 1996. I went the PTU rout first for one year than it seemed to go into a remission for almost a year. Now it is back in all it's glory with the heart palpatations,tremors and mood swings.I was recently dosed with I 131 12mc. I feel on the mend again and hope the symptoms will all be gone soon..My life feels like a roller coaster ride but I have faith it will even out soon.I hope and pray others will who suffer from this dz. will feel compfort in knowing they are not alone in the battle against Graves dz. or other Thyroid disorders.I have had hypothyroid also in the past for years also. Peace and good luck in this battle. Elizabeth Mohammed

Suzanne - 06/19/98 23:16:17
My Email:suzic@qic.com
Where are you from?: Utah
How did you find these pages?: Yahoo
Are you a regular visitor here?: I will be now
Do you have Graves' Disease or related?: I have Graves Disease

Comments:
I was diagnosed with Graves in January of 1996 at the age of 24. I had been to several doctors. After awhile I felt as though my doctors were saying, "hypochondiac" and rooling their eyes as soon as I walked in. I knew something was wrong with me! Not only did I feel terrible but I was moody and had terrible bouts with deppresion. Finally, in January of 1996 my heart rate went up to 180 beats per minute, I had lost 20 pounds, my hair was falling out and my marriage was beginning to suffer. My husband took me to the emergency room. They actually called the police to speak with me because they thought I was having a "bad trip" from drugs. I was ready to scream! I insisted they test me for a thyroid disorder because it ran in my family and that's exactly what it was. Later that same year I had the radioactive iodine treatment after insisting for several months the medication was not working for me. I finally found a great doctor and my life has improved so much! My marriage is stronger than ever and emotionaly I am much better. Some days are still difficult and my synthroid level is still not correct but I do not contemplate suicide everyday anymore. Those of you who are going through this, please.. don't give up! If anyone needs a listening ear, please feel free to e-mail me. I know what you are going through.

Tom Clark - 06/19/98 15:29:06
My URL: http://intranet.all-waysadvertising.com
My Email:tc@all-waysadvertising.com
Where are you from?: Easton, PA
How did you find these pages?: Search
Are you a regular visitor here?: I will be now.
Do you have Graves' Disease or related?: No, my 25 year old daughter.

Comments:
Great site. I never knew anything about this disease until my daughter was diagnosed with it and even then I knew very little. Keep it up. I'm sure she will be writing to you soon. I just found you and called her in Tenn. to give her your Web Site address

LENNY - 06/19/98 02:29:01
My URL: http://www.geocities.com/SiliconValley/Network/5418
My Email:confussed@geocities.com
Where are you from?: i live in massachusetts but was born in AZORES, PORTUGAL.
How did you find these pages?: from yahoo.com
Are you a regular visitor here?: this was my first time but not my last
Do you have Graves' Disease or related?: i do have Graves

Comments:
i like your pages and the story you tell sounds like my story i fist got realy sick back in 1995 and still am not my old self or some thing close to it.I agree with what you said about the doctors if you want to call them that and endo's i was treated in BULINTON, MASS. at the layhee clinik( sorry if it not spelled right) i am on zoloft (antidepression) and levoxyl 0.150 MCG.(hormon replacements) as for me they don't do it.

Linda Spivey-Bjorklund - 06/19/98 02:20:03
My Email:lbjorklund@triax.com
Where are you from?: Baker City, Oregon
How did you find these pages?: Yahoo search
Are you a regular visitor here?: My first time
Do you have Graves' Disease or related?: Yes-diagnosed today

Comments:
Just wanted to see if I could find anyone out here who may know something about this disease. I just got back from Boise, Idaho (183 miles from home) where I saw a specialist who diagnosed me with Graves disease. Tues & Wed I'll be there again to have the radioactive iodine treatment done. I tossed my cigarettes out the car window on the way home and have swore to never smoke again. God help me that I have quit in time...I already have Lupus, now Graves disease..am only 48, married to a wonderful man, have 5 children & 2 step, and 9 grandchildren and 3 more due this year. I don't need anymore bad news. Can you direct me to someplace where I can find information on this please. I guess I'm just feeling a little blue right now...thanks for listening.

shannon smith - 06/19/98 01:17:53
My Email:sstigger@bellsouth.net
Where are you from?: florida
How did you find these pages?: search for graves disease
Are you a regular visitor here?: first time
Do you have Graves' Disease or related?: yes

Comments:
This disease really sucks. I didn't have time to read all of your site, but I will be back. It is nice to not be all alone in the world.

Gigi Wing - 06/18/98 04:19:03
My Email:Tiger@wwics.com
Where are you from?: Walla Walla, WA
How did you find these pages?: Yahoo
Are you a regular visitor here?: I will be now
Do you have Graves' Disease or related?: don't know yet, still going thru all the testing, am real tired of it already.

Comments:
thanks for the great insite on what this disease really is and what it does.

Jennifer - 06/17/98 17:26:37
My Email:jbushway@capital.net
Where are you from?: Argyle, NY
How did you find these pages?: Excite
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: My fater in law

Comments:
My fater in law is very anti computor and a hard core red neck. He has worked since he was 13 years old and now he has been diagnosed with graves disease. He has severe mood swings and double vision. The doctors say they are going to try to put him on some drugs for a year if that doesn't work out then he will have to have his thyroid out. He runs his own construction business and the double vision is severely hampering that. I came to this site to try to get some encourageing information for him. Hopefully it will help him out. Thank you for the information.

Claudia Storey - 06/17/98 06:33:57
My URL:http://aol
My Email:scorpiohme@aol.com
Where are you from?: Arcadia, Calif.
How did you find these pages?: Graves Disease hit
Are you a regular visitor here?: no
Do you have Graves' Disease or related?: daughter (age 250
Any new links I should add?: This was very helpful

Comments:
My daughter was diagnosed in October '98 as she had all of the typical symptoms as well as the "staring eyes" She just looked different. She is in the process of deciding course of treatment, and is leaning toward surgery, because of the eye involvement and the sterility issue.We're going to have to make a decision within the next week or so. She is a dancer and actress and this disease has been very dehibilitating for her as well as an emotional rollercoaster. Our family is hanging in there, and with her now willing to take the Tapazole and not forget she is becoming "human" again. Why didn't you have RAI or surgery? I am so glad to hear that you are doing well emotionally. My best friend's sister had Graves, was emotionally very depressed, poorly diagnosed and inadequately treated, and committed suicide. My friend feels that had the doctors only been better equipped, she would be alive. I think you are so lucky to have not only helped yourself, but the lengths you've gone to to help others will, in turn, help you. Thanks for the Web site. It's very cool! Claudia

Michelle - 06/17/98 01:13:44
My Email:wright@nji.com
Where are you from?: New Jersey
How did you find these pages?: yahoo
Are you a regular visitor here?: first time
Do you have Graves' Disease or related?: I have graves disease

Comments:
I was diagnosed with graves with a level of 21.5. I had radioactive iodine which brought my level to less than 1. At the time of diagnoses, I weighed 99 lbs. I am 5'3" and now am stuck at 125 lbs. With my level where it is (even on levoxyol) I can't get to a weight where I am happy. My one eye bulged and not the other which is quite attractive. My doctor said surgery can fix that but who can afford it? My hair, too, is dry and brittle and my skin is like a snake. Reading your story was like reading my own and I wish more people understood what we go through with this disease. It is not only terrifying for the patient but causes panic within the family unit. It truly is a terrible disease and treatment and understanding among the medical profession is a necessity that just is not there. Keep up the good work and let's hope for the best for all of us.