Guest Name Edwina
Homepage URL:
From: Tennessee
Comments: I was diagnosed with Graves (hyper) about three years ago and visited this site at that time (and many times since). I'm very happy to report that I'm in remission and have been off Tapazole for 18 months. My condition has been borderline during that time but has not gone out of control. At the time I was diagnosed my thyroid scan showed 85% uptake (very hyperactive) and I was very sick with most of the usual symptoms. I elected to hold off on radiation against the advise of my endocrinologist. He has been supportive of my conservative approach even though conventional wisdom seems to dictate immediate radiation therapy. It seems like in so many of the stories I'm reading, we are not being encouraged by doctors to learn about the condition and exercize different options. There IS some chance of remission with this condition but many never take it before they receive radiation and commit themselves to a lifetime of Synthroid (which can take years to regulate). My advise to those of you
who are newly diagnosed is learn as much as you can; get copies of your blood tests and monitor your own levels; and don't hesitate to ask doctors questions. Even though similar symptoms are experienced by Graves sufferers, the disease can affect individuals in very different ways and shouldn't be dealt with like a cookie-cutter disease. You are the master of your own destiny not the doctor!
Sign Time: February 12 1999 at 13:24:32
Guest Name Marjorie Guy
Homepage URL:
From: Alabama
Comments: Your page is very informative. I was researching Graves Diease because I have been referred by my physician to a specialist for my high TSH. I have most all of the symptoms you describe and then some. Thanks for being so open and honest about this diease. God Bless!
Sign Time: February 09 1999 at 21:42:35
Guest Name jeff
Homepage URL:
From: newbrunswick, Canada
Comments: I have just been diognosed myself with graves but a rare form, the only symtom i have right now is my left eye trying to pop out of the socket no other symptoms i don't know if i should expect more in the future or not , my endo is not real sure either.If any one out there has had the same problem as i please let me know what i should expect!!!
Sign Time: February 09 1999 at 19:07:46
Guest Name Michael Gouchie
Homepage URL:
From: Milford Massachusetts
Comments: My wife has suffered with GD for 10+ years. The worst of it coming after our first child in 1995. Finally diagnosed late in 1995, she is now just begining the stabilization and recovery period. God bless her.
Sign Time: February 08 1999 at 11:01:49
Guest Name Katy Kannaly-DeCarteret
Homepage URL:
From: Sanbornton NH
Comments: I have Graves disease, with Systemic Lupus and many other illness that are chronic, I here you about the dam doctors, you dont have a physical disorder so you dont look sick but inside well you know. I had my thyroid removed during my last pregnancy due to a goiter that was sufficating my esphogus. So I still have a thyroid disease, but when you go to a new doctor, get this, "how can you have thyroid disease, if you don't have a thyroid" Well I guess you can send them to school, buy them and education but you cant buy them common sense. Take care, I wish you well, great web site. thanks katy
Sign Time: February 07 1999 at 10:52:14
Guest Name angela
Homepage URL:
From: Pa.
Comments: Thanks!@
Sign Time: February 06 1999 at 23:33:06
Guest Name Mary Lou Cherochak
Homepage URL:
From: Denver, Colorado
Comments: I was diagnosed in Sept. of 1997 with Graves. I took tapazole and it went into remission. It is now (Feb. 1999) back. My doc wants to do RAI. I have not heard or read anything good about this. There HAS to be a natural altrenative!!!! I will keep you informed. If anybody has heard about any natural(HERBAL ETC) remedy, PLEASE let me know ASAP!!
Sign Time: February 06 1999 at 16:18:47
Guest Name susan latham
Homepage URL:
From: jacksonville nc
Comments: I HAVE HYPOTHYROIDISM SO I CAN RELATE TO HOW YOU FELT. I WAS SO RELIEVED WHEN I WAS FINALLY DIAGNOSED. KEEP THE FAITH
Sign Time: February 05 1999 at 22:49:34
Guest Name Judi Burge
Homepage URL:
From: Chandler, AZ
Comments: Thank you for your story. People should be informed about this and know that it is not just stress! I was finally diagnosed in 1995, after being sick for 3 years.
Sign Time: February 04 1999 at 21:42:50
Guest Name GERRY LAWLER
Homepage URL:
From: B`HAM,ALABAMA
Comments:I WAS LOOKING FOR SOMETHING CONCERNING THYROID, WHEN I SAW YOUR PAGES. VERY ENLIGHTNING. GOOD LUCK TO YOU.
Sign Time: February 03 1999 at 15:38:07
|
