Guest Name Laura Sisseck
Homepage URL:
From: Wherever the military sends us
Comments: I was diagnosed with GD last week but suspected it for a few weeks. I went to the endocrinologist and he was shocked at my lab reports. My counts are so high. I am not a candidate for RAI because going off my medications is life threatening. The only surgeon in my area turned my request down because he feels the benefits do not outweigh the risks to remove the thyroid. I am now forced to take meds that do not suppress my problems. I am still extremely hyper and terrified of my prognosis. I have 3 sons who depend on me and a husband who needs me as much as I need him.
Sign Time: May 02 1999 at 21:06:16
Guest Name Kathy
Homepage URL:
From: Rhode Island
Comments: Is anyone taking Tapazole- I also went for an uptake and Thyroid Scan last week, and was told there were no side effects. I am determined I am going to beat this, I am going to refine my diet and stick to exercising as a matter of fact I am going to get ready to go on my daily walk and take in all of the lovely sights that nature has to offer me. We must have a positive attitude, I believe that trully will help us. Hope to hear from you.
Sign Time: May 01 1999 at 16:56:37
Guest Name shoshanah kauffman
Homepage URL:
From: seminole, fl usa
Comments: i wish i had as much say in my treatment as everyone else. being a teenager with gd stinks!
Sign Time: May 01 1999 at 16:46:16
Guest Name Kathy Crudele
Homepage URL:
From: Cranston,Rhode Island
Comments: Gosh, I am not alone- I was just diagnosed as having graves disease, I am so angry but also relieved, why was this not diagnosed as I always go for a yearly exam, and if I did not ask for a thyroid test this probably would have gone on and passed on as something else. Today, I took my first dose of medicine. Hope to hear from you.......
Sign Time: May 01 1999 at 16:38:34
Guest Name Denise
Homepage URL:
From: Miami Lakes
Comments: Diagnosed with Grave's disease one month ago. Had RAi and am on PTU. Biggest problem is my legs, weak and pain like arthritis. Is that usual in GD? Your site is great.
Sign Time: April 23 1999 at 17:51:11
Guest Name Beryl Paintin
Homepage URL:
From: Manitoba,Canada
Comments: I have it, I hate it, but I refuse to let it get me down. My sympathies go to everyone with this horrible, elusive disease. Hang in there Beryl
Sign Time: April 19 1999 at 18:14:26
Guest Name Rachel Ramirez
Homepage URL:
From: NM
Comments: I have also lived with thyroid problems since I was 12 years old. I am now 33. Reading the personal stories was a surprise. My doctors have never explained what counts are good or not, so I have no idea! Pitiful as that sounds, I truly have been at their mercy regarding this. Any information that can clarify numbers in TSH and/or individual T counts would be greatly appreciated.
Sign Time: April 19 1999 at 17:00:07
Guest Name Shari Shrewsbury
Homepage URL:
From: Long Beach, CA
Comments: I am 32 years old, was diagnosed with Graves disease in 1990. Had RAI in 1991, and have been struggling with it ever since. Seems like DR's are only interested in what your TSH level is. I know what the "textbook normal TSH guidelines" are, but what IS normal, anyway? I still continue to struggle from hypo to hyper all the time. It's all very frustrating. I am very thankful that I do not have any eye problems, like some GD sufferers. I am a Police Dispatcher, and my job depends on staring at multiple computer screens (12 hr shifts). I am wondering, is there a link between GD and blood sugar problems? My endo has recently told me I may have the start of diabetes. ( actually hypoglycemia, which he says turns into diabetes). It doesn't run in my family, so I'm wondering if anyone else out there has heard anything about the two being linked together. Any and all mail is appreciated. Thanks!
Sign Time: April 19 1999 at 00:12:40
Guest Name Garth Anderson
Homepage URL:
From: Spruce Grove ,Alberta, Canada
Comments: Great page and I hope someone can benifit from my story and not have to spend as long as I did fighting with this terrible disease. Thanks
Sign Time: April 16 1999 at 13:39:31
Guest NameSue Scott
Homepage URL:
From: Kingsford, MI
Comments: I found out I had graves disease in Jan. of 99. I had taken my 11 year old daughter to the Dr. and he noticed my buldging eyes and ran test that day. I have already had radio-iodine treatment and will return to the Dr. this month to see where I'm at. Thanks for your informative information. Sue
Sign Time: April 16 1999 at 11:06:20
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