Guest Name Jessica
Homepage URL:
From: Nashville,TN
Comments: I was diagnosed in 'Full-blown menopause' at 40 yrs old by my OB/GYN, put on hormone replacement.Found goiter in my neck about 2 1/2 yrs later. Did not see Dr until my heart was pounding so fast I thought I was having a heart attack. I had already diagnosed my own thyroid problem by surfing the net with my symptoms. When I went to my Internist with my info, she immediately tested me and sure enough referred me to Endocrine specialist.More tests and I was told I have Graves. I chose to have total thyroidectomy to remove the goiter as I am a heavy smoker and I was afraid of cancer forming. Dr agreed and told me that RAI only prolongs the surgery. I take Levoxvl .15 mg daily and I feel great. Still have the Eye disease but I'm learning to accept that also. Yes gained 20 lbs after surgery but have now began to lose it. It has been 18 months since my surgery. You can live with Graves disease, be thankful!!
Sign Time: November 04 1999 at 20:25:12
Guest Name aimee' cardella
Homepage URL:
From: louisiana
Comments: i was diagnosed with graves' disease in the 5th grade, and i am now dealing with all the effects in my 10th grade year. learning more about my disease helps me understand what i am going through. it is very hard at times and i go through stages of depression constantly. i am glad to find your web page and was happy to read the story and facts. i believe in the past 5 year, i still learn something new about the disease each day. thanks for everything.
Sign Time: November 03 1999 at 11:26:42
Guest Name Margaret Keelan
Homepage URL:
From: Newcastle, England
Comments: It was great to find your website and find that there are other people experiencing the same things as me. My T4 level is 30.6 and my TSH is 0.04 whatever that means.
Sign Time: November 02 1999 at 10:02:50
Guest Name Christine
Homepage URL:
From:
Comments: Just checking sites for info. Have some very similar symptoms, but no goiter. Have been tested several times, negative. Still wonder. Scratchy eyes, tired, weakness, low libido, no joy, (in spite of wonderful husband) mentally foggy, puffy face/hands, weight stable (I eat like a bird, don't lose) but not overweight. I'm 59, on estrogen, but feel better without it. The estrogen makes my eyes gritty and puffy. However, lose ALL interest in sex and dry up if I don't take it. Sleepy all day. No medical insurance, so hate to pay another doctor to tell me my blood tests are normal. Am a recovering alcoholic (over 15 years) & was told that hypothyroid is prevalent in alcoholics and recovering people. Think I could have mild symptoms? Have had them for years and years. Wish I could find a reason for feeling this way. Any comments?
Sign Time: November 01 1999 at 19:07:59
Guest Name Phyllis Bernel
Homepage URL:
From: Akron OH
Comments: I've emailed you just a few moments ago, and you may certainly print my story if you would like. It is interesting, my dear, that I did not read your story until after I'd written to you via email. I just told my husband that as I read your story, I felt I was nearly reading my own life story, give or take a few details. I, too, at one point had reached the suicidal stage, and that was when I got in to the doctor who probably saved my life and did diagnose my GD.
Sign Time: October 31 1999 at 10:21:34
Guest Name HELEN RUTTER
Homepage URL:
From: BEDFORD, ENGLAND
Comments: I HAVE FELT VERY ILL SINCE 1994, FINALLY DIAGNOSED IN 1997. TOOK CARBIMAZOLE FOR 6 MONTHS, DID NOT WORK, HAVE TAKEN PTU FOR 18 MONTHS-LEVELS UP AND DOWN ALL THE TIME. I REFUSE RADIO IODINE BECUAUSE I AM TOLD MY EYES WILL LOOK WORSE. SO, I AM DUE TO HAVE TOTAL REMOVAL SURGERY SOON. THIS IS VERY SCARY, BUT IF IT ENDS THESE DREADFUL SYMPTOMS, I CANT WAIT. NO DOUBT THEN I WILL ENTER A WHOLE NEW WORLD OF UNDERACTIVITY AND WEIGHT GAIN, WHICH I REALLY DO NOT NEED!!!!!!!!!!!!!!!!! ITS NICE TO READ OTHER STORIES AND KNOW YOU ARE NOT ALONE.
Sign Time: October 30 1999 at 18:39:41
Guest Name Debbie Manahan
Homepage URL:
From: Sand Springs, OK
Comments: I had the RAI today so am enjoying reading all you information. It is reassuring to know that others have had similar experiences. Thanks for the opportunity to learn more about this disease.
Sign Time: October 28 1999 at 21:00:52
Guest Name Brevonda Ford(Bre)
Homepage URL:
From: Colonial Heights, VA
Comments: I was just diagonis with Graves Disease today and right now I am just thinking and looking for information and this was the first web-site I have found about Graves Disease. Very good page. Thanks.
Sign Time: October 28 1999 at 12:28:00
Guest Name mikko
Homepage URL:
From: Japan
Comments: hi! i've got grave's(its called "basadow's" in japan) when i was 22(5 years ago). i've almost recovered now, still taking pills, though. And my left eye lid has a bit of tense.
i wanna write more but i'm afraid i have limit of my english. anyway, greetings from japan:o)
Sign Time: October 28 1999 at 11:27:00
Guest Name Kate Lockwood
Homepage URL:
From:
Comments: I just found your site yesterday and I already feel better. I am a month past my radiation treatment for Graves Disease and I am not feeling better nor has there been any change in my blood levels. I was angry and disappointed and then I found your site. I read some of the stories you posted and I felt better, there are people that understand and that have gone through what I am going through. It just felt good, I didn't feel so isolated. Thank you.
Sign Time: October 27 1999 at 10:00:06
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