Guest Name Guy Morvillo
Homepage URL:
From: Staten Island NY
Comments: I was diagnosed with Graves Disease. 4 weeks ago. I am currently on a Tapazole Regime with Atenolol (ß blocking).It has only been one week and I feel better. I am very reluctant to take any type of radioactive iodine treatments. I have read all the literature from idiot descriptions to JAMA and AACE Clinical Practice Guidelines for Evaluation and Treatment of Hyperthyroidism and Hypothyroidism. Nowhere is there any indication of any data or studies of what happens 20/30 years down the road, just remission rates after radioactive iodine treatments. Surely, ingesting ß particles and high-energy gamma rays have some type of long term effects. Any Studies I have overlooked? Thank you for this site! Guy
Sign Time: November 15 1999 at 12:23:27
Guest Name maggie relick
Homepage URL: maggie
From: little torch key,florida
Comments: I HAVE BEEN LIVING WITH GRAVES FOR WELL OVER 2 YEARS (MAYBE SINCE BIRTH) I AM SO MISERIABLE AND THE DOCTORS DON'T KNOW WHAT TO DO AS FAR AS MEDICATION OR CURE. I SURE WOULD LIKE A SALUTION................
Sign Time: November 12 1999 at 20:34:04
Guest Name Erika Bleier
Homepage URL: none
From: Outerbanks, NC
Comments: Dear Sue,
Thank you for what you have done so far, I know the pain we all feel is so hard to explain to others, I have had this dam thing since I was 17, they said it went away spent years without medication then Bam!it hit me like a ton of bricks at 46 years old. We dont have an entrocologis here on the outerbanks so I have to arrange special stuff just to get medication but have had good luck this last year. Every thing you talk about is true, we should write a book, and you are one that could do this. I'll help if I can. I am a new computer user do not know as much as you do, but I am a quick study. Well, if you would like to write great, if you need to get away come down and see us in "heaven" the ocean is 1 block away every day and "it never moves" at least one thing in my life is stable! Again, thank you for your efforts and time Erika Bleier
Sign Time: November 12 1999 at 17:56:44
Guest Name Diana
Homepage URL:
From: New Jersey
Comments: I had all the classic symptoms and was finally diagnosed with GD in April '97 after 4 months of seeing one specialist after another. After my RAI, I started feeling much better but I have never really felt 100% since the GD onset. In addition to the aches/pains, swollen/scratchy eyes, bulging eyes, fatigue,etc.,I experience breathing distress - I'm getting enough air (volume) but it's as though the air I take in isn't "good" air; I am constantly taking deep breaths-people think I'm yawning. I have never heard anyone with GD expressing a similar symptom - the Endo. just blows me off. If you have a similar symptom, I'd like to hear from you.
Sign Time: November 11 1999 at 11:04:55
Guest Name Beth I. Wallace
Homepage URL:
From:
Comments: Love you, Aunt Sue.
Sign Time: November 10 1999 at 19:39:47
Guest Name Krista Marshall
Homepage URL:
From: Ontario, Canada
Comments: I have recently been diagnosed with GD. Currently, under going treatment and having a rough time with the changes - weigh gain, feeling laggy, etc. anyway reading about other people's battles has given me the courage to go on and fight this GD disease. Thanks
Sign Time: November 10 1999 at 00:10:39
Guest Name Melanie
Homepage URL:
From: Memphis, TN
Comments: I was diagnosed w/ Graves about a month ago. Symptoms were: daily headaches, moodiness (including outbursts), heart palpitations, hypoglycemia, 50 lb. weight loss, shaky hands, among others. Taking Inderal and propylthiouracil (600 mg per day). Now I am feeling better, no more headaches, shakiness better, strength returning. I go back to the Endo next week. I am afraid he will want to push RAI, and I am very afraid. What I have read on your page and others is that RAI is as not an easy "fix" as the Doctors may lead you to believe. Should I just stay on the meds, since I do seem to be responding to them? Or does RAI actually make anyone feel any better? Am I going to gain the 50 lbs. back plus more? I've gained 6 in the past week alone. I would appreciate any feedback anyone can give me, or just a hug will do. Thanks.
Sign Time: November 09 1999 at 10:52:02
Guest Name Moe
Homepage URL:
From: Northern Canada
Comments: Diagnosed 11+ years ago as hyper - radio iodine> now hypo 300mg daily. Not fun.
Sign Time: November 08 1999 at 00:55:20
Guest Name Carrie Byford
Homepage URL:
From: I live in Lone Grove, OK
Comments: I found out I had Graves Disease in January 1999. I had the the RAI procedure done then and I have been living a nightmare ever sense. I don't know what to do now (neither does my doctor)I think the first thing I need to do is find another doctor, but I am so tired of being at their mercy.
Sign Time: November 06 1999 at 23:51:29
Guest Name Sandra Yetman
Homepage URL:
From: Montreal, Quebec, Canada
Comments: I was very pleased to see this site. I was diagnosed with Graves disease in 1993 at the age of 23. I had been told since I was a teenager that I was stressed until I started showing outwardly physical signs of the disease (drooping eyelid). My family thought I was having a nervous breakdown. My husband thought I was mentally unbalnced. Everyone said I was too skinny and I looked awful. My father felt guilty when I was diagnosed because he had been diagnosed with Graves disease 10 years before and he didn't see the symptoms in me. I had tried medication at first (propyltyruasil and inderal) I had too many side effects with the inderal and after a year chose radioactive iodine. I practically have no more thyroid gland left and now have gone hypothyroid. It has been five years I have been like this and at least 2 times a year I have to have my medication adjusted and when the meds aren't sufficient I gain alot of weight rapidly and suffer with extreme exhaustion. But I am happy because now I know what was wrong with me and I wasn't the crazy one everybody else was! Ha! Ha!
Sign Time: November 06 1999 at 19:38:46
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