Guest Name Helen Grice
Homepage URL:
From: Murrumba Downs Queensland Australia
Comments: I have been battling graves disease for over 2 years now. I am in remission at present and hope to stay that way. I am looking for sugguestions for alternate vitamins that I should be taking to help keep it at bay. Any suggestions?
Sign Time: December 14 1999 at 19:16:48
Guest Name cheryl garley
Homepage URL:
From: kansas city
Comments: Just diagnosed today 12/14/99 and I appreciated all of the stories and info. I have a better understanding of what may be ahead for me. I am 53 and have had tremors all over my body and heart palpatations for quite some time. I also have one eye that a eye doctor couldn't diagnose thinking it was pinkeye but it never got better. I am menopause age and thought the sweating was hot flashes. I hope my treatment will be successful. wish me luck. cheryl
Sign Time: December 14 1999 at 18:17:58
Guest Name Marianne Bacheldor
Homepage URL:
From: Darien, CT
Comments: I was just told yesterday that I have Graves' disease and I am only 26, if you have any words of wisdom or emcouragement please feel free to email me back. Thanks a bunch, Marianne
Sign Time: December 10 1999 at 16:58:24
Guest Name Fran Kopp
Homepage URL: My Personal War with Graves' Disease
From: San Juan Capistrano, CA
Comments: Thankyou for the web site. I was "diagnosed" with GD June 1999. I had already had RAI for Hyperthyroidism in May 1997. Thought I just had a hyperactive thyroid (that's what the Dr. called it). In early April 1999, I came down with a virus and it was the worst virus I have ever experienced. After that my eye lids had nodules under the outer area and the whites of my eyes had bubble like water blisters and my eyes felt very scratchy. I went to the Dr. several times about it and was treated for allergy. I was scheduled for a repair surgery in June 1999 (unrelated to GD) and the internist who did my pre-op exam saw my eye condition and referred me to an optomologist. He mentioned Graves. The optomologist took one look at me as she entered the room and said I had a classic look of GD. The right eye is more affected than the left eye. She is following up with periodic check ups to monitor my condition. She said I am very lucky that most of the build up fatty tissue is toward the front of my eyes so I don't have the pressure on the optic nerve (or double vision). I am not happy with the puffy lids and bags, but count my blessings: I can see! The Optomologist said there is no treatment for the immune system attacking the eye tissue, and It will subside in time - maybe a year. In the meantime, she said not to do anything to boost my immune system. I have always been health conscious: eating right and taking suppliments and there is alot of hype out there about building up your immune system and maybe that's not a good idea for everyone. I don't know of anyone in my family ever having this so don't think it is heredity connected. I would hate to think that I caused this from building up my immune system in the first place. Not sure if that is possible though. Anyway, I want you to know that I appreciated finding your web site today and will check back. I don't know anyone who has GD in my circle of friends and now don't feel so alone. Thanks, Fran
Sign Time: December 08 1999 at 15:31:02
Guest Name christy
Homepage URL: what a great site
From: minnesota
Comments: this site has warmed me,like a blanket on a long winters night. Yes like many of you I have Graves,diagnosed in 1997. I still feel the anxiety,nervousness,and that my mind is not quiite clear (and i still can,t spell) amoungst other symptoms.Will any of this go away? My immue system does not seem to be there at all. Has anyone out there seen a homeopathic physician for this condition? Did it help? Well here is to good health ,if there is such a thiing any more.
Sign Time: December 04 1999 at 22:18:10
Guest Name Laurie M.
Homepage URL:
From: Timmins, Ontario
Comments: I was diagnosed with Graves Disease and a Thyroid condition about eight years ago. It took a long time to diagnose (5 years). Before that I thought I was losing my mind. My family doctor at the time continued to tell me I was an over stressed working mother and treated me with tranquilizers and sleeping pills. This went on for about three years. I was finally properly diagnosed when I was admitted into Intensive Care in the hospital because of a Thyriod Storm. On admission I weighed about 80 pounds and my heart rate was 169 per minute. Since then I have been on heart medication because of the damage caused to my heart. Five years ago I had surgery on my eyes (most painful thing I have had to go through in mt life). I had my thyroid completely destroyed by radioactive iodine as well. I have been wanting to tell someone this for a long time. Thank you for your Guestbook. I hope to hear from others who are having problems with their eyes as I was told in October of this year that my eyes are beginning to "buldge" out again. I may require surgery in the future. Thanks.
Sign Time: December 01 1999 at 21:21:44
Guest Name David M. Green
Homepage URL:
From:
Comments: Read your information. I have not been diagnosed yet, but have been having problems for about three years. I have most of the symptoms that you talked about. I have an appointment for a scan next week, and an appointment to see the specialist December 16. I hope to get to the bottom of this. Thanks.
Sign Time: November 24 1999 at 21:20:19
Guest Name Becky Cox
Homepage URL:
From: Wichita Kansas
Comments: I was diagnosed with Graves Disease after collapsing at the grocery store; I had an appointment to see a specialist in Jan; saw him immediately!!
Sign Time: November 22 1999 at 12:37:30
Guest Name Rita Hutton
Homepage URL:
From: Michigan
Comments: I was dianoised 3 years ago. Im now undergoing eye surgery. Do you know of any groups in Michigan that I could become involved in. I would like to help other people that are going through the same thing.
Sign Time: November 19 1999 at 17:04:28
Guest Name Angela
Homepage URL:
From: Texas
Comments: I was diagnosed with Graves in January of this year after a hellacious 5 years of stress, strain and multiple personal tramas. So far I have decided to try the least invasive treatment of PTU and Inderal. Apparently this combination is supposed to reduce the visible effects of GD while putting a wet blanket on the thyroid's activity. So far it seems to be working. My left eye (the only one afected) doesn't look like it's falling out of my face anymore, my 'orange-peel' complection is starting to smooth out and the tremors are lessened to the point where I don't spill my coffee anymore. Even my goiter has gotten smaller. My mood swings are still there, although not as bad as often, and my blood levels are slowly returning to normal. I am hoping that a lifetime (46 years) of iodized salt and stress were the only major contributing factors, but only God can answer that one for sure. If I do need to have my thyroid removed - either through radiation or surgery - I am grateful for having tried the PTU/Inderal combo. It has given me more time to research my GD. It has also - at least momentarily helped me to look more like I used to feel. And that counts for something! Sue, I really appreciate what you've done here! This has been the best site I've seen to bring understanding and clarification of the human element as it (we) deal with this awful crap. thankyouthankyouthankyouthankyouthankyou
Sign Time: November 16 1999 at 16:19:05
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