Guest Name hilary
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From: TILLSONBURG,ONT.
Comments: A GOOD FRIEND OF MY DIED LAST WEEK AFTER BEING TREATED WITH THE RADIO ACTIVE IODINE,IT HAS BEEN A SHOCK. APPARENTLY HE REACTEDTO THE MEDICATION AND IT CAUSED A SEVERE CONTRACTION OF HIS AORTA. DIED INSTANTLY. THIS WAS NOT SUPPOSED TO HAPPEN. WHAT KILLED HIM? I NEED TO KNOW??
Sign Time: May 17 2000 at 22:15:31
Guest Name Colleen
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From: South Central Missouri
Comments: I was diagnosed yesterday with Graves. I came home feeling I had made the right decision to go with RAI and meds for hypothyroidism. Your story could have been written by me. Am I expecting too much to think I will actually be "normal" in a few months? I can't stand this nervousness and sleeplessness much longer. I have been on Zoloft for depression,which is helping me tremendously, but I want to be healthy again without the chemicals. I have probably had this for over 20 years. I have been treated for anxiety, depression, insomnia, etc. for at least 20 years. And will I gain a lot of weight? This has me concerned also. If anyone can answer any of these questions, please let me know.
Sign Time: May 17 2000 at 19:54:23
Guest Name Linda
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From: California
Comments: Hi. I was just diagnosed last Friday (5/12/2000) with Graves' disease. I was told it needed to be taken care of but wasn't serious. Now I am beginning to wonder. I am taking Propranolol to help slow down my heart rate and Propylthiouracil for whatever. Looking back, I may have had this for the past three years at least. Thanks for all the information. Good luck to all.
Sign Time: May 17 2000 at 00:24:12
Guest Name Jan Field
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From: Sydney, Australia
Comments: I was diagnosed with Grave's Disease November, 1999, I wasn't told how long I might have had it but was told that it was 75% damaged. I was to have radio active treatment but I have taken a job in Sarajevo, Bosnia & Herzegovina for 12 months so I have been put on a 'block & replace' trial. I had had a very 'bad' year last year, things seemed to take their toll on me, I became very agitated and upset all the time, started to get the 'shakes', couldn't remember things, felt extremely hot all the time, cried at anything and everything and in November suddenly seemed to lose about 26 pounds yet I was starving hungry all the time, couldn't sleep. Had been to doctors on and off convinced I was lacking something or just going plain crazy when I was told what I had. I felt great, there was actually a reason for all this. Now I have put back the 26 pounds plus maybe another 7 pounds. My skin is so dry (and it has always been very dry), I'm still feeling tired and to put it honestly, I feel terrible. The best I felt was when I was diagnosed and started medication but now I seem to have gone in the other direction. I had my blood levels taken before I came over here and my medication was raised, I go home for a weeks leave in July so I will have another blood test done and see where I am. I am no different from all of the other sufferers but it is nice to know I am not alone. Jan
Sign Time: May 16 2000 at 07:42:19
Guest Name ERIN
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From: DAMON,TEXAS
Comments: I WAS DIAGNOSED WITH GD ON MAY 1, 2000.I THINK I MOST OF HAD IT FOR ABOUT 3 YRS. THINKING BACK. I JUST WENT TO THE DOC. 4 WEEKS AGO AND TOLD HIM MY SYMTEMS AND MY NECK. THEY SET ME UP FOR UPTAKE SCAN AN ULTRA SOUND AND A SCAN OF MY THROID AND DID THE BLOODS TEST.WITHIN A WEEK MY DOC. CALL MY AND SENT ME TO AND ENDO. THE 1ST. DIDN,T WANT TO SEE ME UNTILL THE END OF JULY, SO HE FOUND MY ANOTHER ONE( NOT IN MY NETWORK) BUT HE IS WORKING WITH MY DOC.ANYWAY THE DAY I CALLED THE 2CD.ONE I WAS IN HIS OFFICE THAT AFTER NOON.HE PUT ME ON TAPAZOLE 30MG. ADAY. IT SEEMS TO BE HELPING. HE SAID I HAVE A CHOICE OF RAI OR SURGERY. ANYWAY I JUST WANTED TO LET YOU KNOW. I DO LIKE YOUR SITE IT HAS HELPED ME ALOT IN KNOWING WHAT MIGHT OR MIGHT NOT HAPPEN. THNAKS ALOT ERIN...
Sign Time: May 11 2000 at 00:01:59
Guest Name Suzanne Hannon
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From: Connecticut and Florida
Comments: Thank God for your pages.. I am not alone and I am not nuts.
Sign Time: May 09 2000 at 15:38:25
Guest Name rita wallace
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From: carrollton, ky
Comments: my mother has graves disease, it has tremendously effected her eyes, she has and is receiving treatment continuously. she has had some relief but still nothing seems to help alot. if anyone knows of any types of organizations or foundations that help people sufferering from this disease i would appreciate hearing from u or if anyone just has words of encouragement thank u..rita
Sign Time: May 08 2000 at 19:01:02
Guest Name Susan Bellows
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From: DC metro area
Comments: I'm 25, married and have 3 little kids (soon to be 5, 3,& 1). I was just diagnosed with GD. My endo says I have 2 weeks to decide between RAI and surgery....but I don't know what I will choose. There's no better way, huh? Thanks for sharing your story.
Sign Time: May 05 2000 at 00:23:37
Guest Name Rita
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From: Joplin Mo
Comments: I just found out last week that I have Graves. I has gone to the er with chest pains, shortness of breath all of the other symptoms of Graves. The cardiologist said I needed to have a stress test done or it could be my gall bladder. A friend of mine works for a cardiologist and got me an appt with him. It took him about 2 minutes to say I needed to have a blood test done to rule out hyperthyroid. When the blood test came back, he sent me for the thyroid uptake scan and diagnosed me with Graves. I still need to learn more about this disease but what I have found out so far is a little frightening. I am 36, a mother of 4. If anyone would E-Mail me with info and suggestions I would appreciate it. Thanks
Sign Time: May 02 2000 at 15:37:59
Guest Name Jo Ann Wagner
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From: New Castle PA
Comments: Reading your stry was ME!! That was ME!! I have Graves, was treated about 7 yrs ago, when I was in Thyroid Storm.. All I can say is it is great to not be alone!! I still have bad days even ones where I ask my husband "Am I going crazy"? It is wierd & to be honest it sucks at times.. But I recently started a new job w/ about 90% less stress than my last & I feel about 75% healthier.. I have been searching for a form of a support group, somewhere to go & say hey, anyone else out there feeling out of sourts?? Any suggestions?? Thanks for the story!! Jo Ann 32 year old survivor of Graves..
Sign Time: May 02 2000 at 14:15:35
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