Guest Name Ruby J. Brake
Homepage URL:
From: Texas
Comments: Just got this computer and my son has encourged me to use it. My interest is on my thyroid. My life has been destroyed by this unknown killer to me. I do not know how long this has been affecting me. I know I am totally different in too many strange ways. I am beleiving that it has came back alive after the treatment of iodine radation treatment. Is this possible? I have enjoyed this web page. There seems to be more people out there like me. Would really like to here from other people out there.
Sign Time: October 22 2000 at 10:08:48
Guest Name Faith Lucas
Homepage URL:
From: St. Charles, Missouri
Comments: Thank you for this website. I was just diagnosed with GD yesterday (10/20/00). I had every one of the symptoms yet had no idea that there was a name for this disease. My regular doctor at first misread my blood test results and informed me that I was probably "cold sensitive". I called him back the following day and apologized (why?) for "second-guessing" him, but asked if he could be wrong because I am always HOT! He took another look at the test results and then referred me to an endocrinologist. Right now I am on trapazole (20mg. 2 times a day). I hope this doctor's got it right. Hang in there everybody--we're not nuts!!
Sign Time: October 21 2000 at 23:00:24
Guest Name Anna
Homepage URL:
From: Toronto, Canada
Comments: I found your website interesting and informative. I am 23 years old and was diagnosed with Grave's Disease in July 2000 and figure I had symptoms dating back about 6 months, though they were minor to begin with. I have decided I am very lucky after reading your story and entries in your guestbook. I was diagnosed very quickly considering. I went to see my family doctor after I had nausea, weakness, rapid pulse, palpitations, frequent bowel movements, and weight loss for a few weeks, which were worsening. She did blood tests and I knew I was hyperthyroid within a few days. I saw the endocrinologist the same week and was booked in for more tests which eventually came back as a diagnosis of Grave's. I was started on tapazole and have been responding very well, my dose is now cut down to 1/6th of what I started on, and I am feeling great. I feel I have been very lucky and I just want people to know that its not always as bad as it seems. Remember to think positive, and you will feel better. I know theres more ahead of me, but I know I can handle it. I have great support systems, and thats really important.
Sign Time: October 20 2000 at 22:20:53
Guest Name Meghan
Homepage URL:
From: Wollongong, AUSTRALIA
Comments: I have this week been (finally) diagnosed with Graves (Oct 2000) after struggling with all sorts of weird symptoms for about 3 years that made me feel like I was going around the twist! Iam a 24yr old female, and I am currently trying to find a way to make people understand that the reason I can't handle the two hour train trip each way to work is that I AM NOT lazy or slack, but suffer incredible anxiety and depression. Until reading evrything in this site I hadn't realised the extent to which this GD is affecting me! I am doing crazy things (aren't we all) from walking into walls, boiling in the middle of winter, dropping things and forgetting continuously (ummm... where was I?)and those are just the days I can manage to GO to work or outside the house. I am convinced everyone in my household/work thinks I am a bludger or something (even I think I am sometimes) but I am so darn tired, and cry at the drop of a hat... I am sure you can all understand this, I am grateful for this site and would also be grateful for anyone who can email me with any advice as to how I can better my situation. I don't feel like I am going anywhere...I am aiming for a great career and work life, but these days am just wanting to stay away from the train adn away from the stress. (Not to mention the puffiness has had me wearing my normal suit to work; stylishly accessorised with "flip flop" shoes because I can't wear my normal covered in ones!! Once again, thank you for this site,I have been crying (again!!!) when I saw the checklist and when I saw something familiar...I am just sooo happy I am not going off the tracks!!!!
Sign Time: October 16 2000 at 22:45:32
Guest Name Gail
Homepage URL:
From:
Comments: It is time we speak out and make everyone aware of what this dreadful disease is doing to us and make them understand. I am starting a support group in my hometown. Not only for the people but for the doctors to hear us roar.
Sign Time: October 16 2000 at 20:43:16
Guest Name Esther Jansen
Homepage URL:
From: Sliedrecht, the Netherlands
Comments: HI there, just wanted to say:"Thanksfor such a wonderfull site!!" I am Esther, a 28 yr old SAHM to one son Lorenzo who is turning 4 in December. I was diagnosed with GD one year ago, after having had all the symptoms since May 1999. Right now, after one year of Strumazol, I was put on PTU, because my t4 was 74 again (highest ever 77 normal 11-16). So, change in medication, change in thyroid. My goiter is back in full blown size, trembling again, trembling voice, well, you all know the drill. I went from being a healthy young mother who was very active to being wheelchair dependant (complications of GD), and having absolutely painfree moments. Not being able to take care of my family or household. Having to depend on the help that comes in every day and all people that can make some time free for me. In searching the web for more information, I thought of something: I wanted to start an e-mail list for patients of GD and their family and friends. Object: giving support and information to people who need it and to share experiences, day to day stories, and most important: educating people. So, I started my list today !! Anyone that's interested, go to: www.egroups.com/group/Graves-disease Join us please !! There are too many people out there that need info, help, educating, and all other imaginable things only Graves' patients know. Thanks !!! Esther (still hanging in there)
Sign Time: October 16 2000 at 17:22:28
Guest Name Susan Barnes RTR.Cma
Homepage URL:
From: Ohio
Comments: I saw myself in your story..the worse pat for me was working for Dr's and they still didnt know what was wrong with me..
Sign Time: October 14 2000 at 18:43:19
Guest Name Julie Farer
Homepage URL:
From: Michigan
Comments: Hi everyone! I am also thankful for this web site because I learned so much more about Graves Disease here than from my endocrinologist. Isn't it funny and annoying that specialists don't understand that people usually are sensitive to things going on in their bodies, and know when something is off. I guess it's just easier to toss it off to being an overly emotional female, who is too fixated on symptons and signs. I was diagnosed with Graves Disease almost 3 years ago--and as many of you, think that I was sick for years before the diagnosis. Had almost every sign and symptom there was--very very unpleasant. Anyway, after almost 3 years of difficulties with the specialist, my primary care physician started following me. Currently I am the closest to the normal TSH level than I have been, and feel almost normal. It's really nice to have my normal personality back, and my friends and family REALLY appreciate it. Hope that you all are able to find a medical professional than can help, who believes you and is supportive! This site is great!
Sign Time: October 12 2000 at 19:01:04
Guest Name Kari Tremain
Homepage URL:
From: Connersville, IN
Comments: My mother in law has graves' disease. She has had 4 eye surgeries. She still has blurred vision. The eye surgeries have not helped! Right now she has to wear a cathetor all the time. We don't know if it's because of the disease or not. She is seeing a specialist today. I wish there was something I could do for her but they only thing I can think of is be there for her. Is this disease life threatening? I heard it attacks your organs one at a time. I couldn't find any information regarding that on the internet. Oh by the way she is 56. My favorite rock band is AEROSMITH!!!
Sign Time: October 11 2000 at 10:33:07
Guest Name jason
Homepage URL:
From: melbourne Australia
Comments: Hi, i am a 32 yo male who was diagnosed with multinodular hyperthrotoxicosis 4 yrs ago i am still on carbimazole and my doctor still cant give me answers re:RAI or anyting else he is very non commital when it comes to what next? i have only really been stable for three months of the last 4 yrs. i am still very lonely and scared.Wheres the advice and support groups for men with graves non here in oz anyway great site thanks
Sign Time: October 09 2000 at 21:37:34
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